tying your shoes in the morning. brushing your teeth.  hugging your family on the way out the door.

all small things that many people do without giving too much thought.  but what if your motor skills slowly deteriorated, robbing you of the ability to do everything you enjoy, while your mind remained sharp? this is the tragedy of amyotrophic lateral sclerosis (ALS), a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord.  also known as Lou Gehrig’s disease, ALS is 100% fatal and has few treatments to improve the quality of life.

ALS affected my family when it claimed my grandmother, Jeanmarie, in 2006. My memories of her remain positive, even in the stages of her declining health. Jeanmarie — or Grammie to me — stayed strong until the very end.

thankfully, many of the resources provided by our local chapter of the ALS association helped in the day-to-day fight against the disease. As the only national nonprofit organization dedicated to fighting Lou Gehrig’s disease on every front, the ALS association provided my family with support groups and access to information and equipment to help us understand and cope with the disease.  they had our back, and now i’m pleased to have theirs. the ALS association is one of the organizations supported by ebb + flow yoga.

may is ALS awareness month, so join me in speaking up to give hope.

ALS association | packard center for ALS research at johns hopkins | the pete frates fund

Jane Daly Danese